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#spoonie photos and videos on Instagram

Medias attached with hashtag: #spoonie on Instagram

baby bear ๐Ÿผ๐Ÿป (@chronicbabybear) Instagram Profile Photo chronicbabybear

baby bear ๐Ÿผ๐Ÿป

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"BuT yOu DoNt LoOk SiCkKkKkK" ๐Ÿ˜ You can't tell I'm riding on a mobility scooter just to take my dog for a walk to the park down the street, or the fact I slept until 1pm, or how I kept having to stretch my legs out because my pain medicine hasn't kicked in yet and they're aching if I keep them still. But you can see that I am fab, I can see why you'd feel that way ๐Ÿ‘Œ There is NO SHAME in looking good even though you don't feel well, remember that #spoonie

Sallyโœจ๐ŸŒน๐ŸŒ™ (@sl33pytim3) Instagram Profile Photo sl33pytim3

Sallyโœจ๐ŸŒน๐ŸŒ™

image by Sallyโœจ๐ŸŒน๐ŸŒ™ (@sl33pytim3) with caption : "I just wanted to remind yโ€™all that โ€œyou donโ€™t look sickโ€ :) #dysautonomia #spoonie #potssyndrome #potsie #bratz #tumblr " - 1764095189029742889
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I just wanted to remind yโ€™all that โ€œyou donโ€™t look sickโ€ :) #spoonie

Vita Sciences (@vitasciences) Instagram Profile Photo vitasciences

Vita Sciences

image by Vita Sciences (@vitasciences) with caption : "Reduce headaches to completely zero! Recommended by neurologists, 'Migravent' by @vitasciences - combines the most effec" - 1764095102811438001
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Reduce headaches to completely zero! Recommended by neurologists, 'Migravent' by @vitasciences - combines the most effective ingredients researched in clinical studies to support pain-free neurological comfort and ease.

Stephanie Buzek ๐ŸŒฟ๐Ÿ‡๐ŸŒ (@plantbasedskooch) Instagram Profile Photo plantbasedskooch

Stephanie Buzek ๐ŸŒฟ๐Ÿ‡๐ŸŒ

โœจ Mandie Zangora โœจ (@spoonieswift91) Instagram Profile Photo spoonieswift91

โœจ Mandie Zangora โœจ

Instagram Image by โœจ Mandie Zangora โœจ (@spoonieswift91) with caption : "Guess whoโ€™s back in the hospital ๐Ÿ˜ฃ๐Ÿ‘Ž๐Ÿผ Severe pain and relentless nausea and vomiting 
Prayers that they get this under co" at Saint Thomas - Midtown Hospital - 1764094680427064465

Guess whoโ€™s back in the hospital ๐Ÿ˜ฃ๐Ÿ‘Ž๐Ÿผ Severe pain and relentless nausea and vomiting Prayers that they get this under control would be greatly appreciated โ™ฅ๏ธ #spoonie

image by Jade Lane-Field (@jadelanefielddesigns) with caption : "You yourself, as much as anybody in the entire universe deserve your love and affection - Buddha

#vscocam #vsco #ehlers" - 1764093991304603974
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You yourself, as much as anybody in the entire universe deserve your love and affection - Buddha #Spoonie

Savannah Marcum (@_heyo_its_mayo_) Instagram Profile Photo _heyo_its_mayo_

Savannah Marcum

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New video just went up!! Link in bio! ๐Ÿ˜ป๐Ÿ’š This is the start of a new health series I'm doing which will be all about Mast Cell Activation Syndrome. This is a series Iโ€™ve wanted to make for a YEAR, but I held off because I wanted to have more health stability under my belt before I went sharing about what Iโ€™ve done to improve my health. Iโ€™ve made it almost a year and a half now with stable and steadily improving health with no back slides. Iโ€™ve had SO MANY people ask me how Iโ€™m getting better, and how I went from 0% of my health to 70% better, and I finally feel like now is the time to share this. With the recent loss of a friend of mine, (whom had all the same chronic illnesses as me โ€” Lyme, Co-Infections, and Mast Cell Activation Syndrome ~aka MCAS) itโ€™s been a reality check for me. Itโ€™s made me want to fight harder to spread awareness and help others. Losing her did change the tone of this series too. As I shared in my last video, a tribute cover dedicated to her, I shared that I was about to start this series the day I found out about her death. When I heard the tragic news, I put the series on hold again because I instantly knew it would change the tone of this. Iโ€™m now very ready and excited to share all of this with you. It would mean the world to me if you watch and share this series, and I know it would mean so much to my friend too. Thank you to all who will be sticking around, following along, and listening to this series. ๐Ÿ’š๐Ÿ’š๐Ÿ’š๐Ÿ’š ~~ For more info watch the video, and read the full description of the video on YouTube. I list more links and references. ~~

Amy-Lynn's Healing Journey (@amylynnsjourney) Instagram Profile Photo amylynnsjourney

Amy-Lynn's Healing Journey

image by Amy-Lynn's Healing Journey (@amylynnsjourney) with caption : "Been outside to get your dose of vitamin D yet today? It's important for a healthy body, especially for those of us with" - 1764093618689321426
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Been outside to get your dose of vitamin D yet today? It's important for a healthy body, especially for those of us with EDS ๐ŸŒž ๐ŸŒž ๐ŸŒž

image by Nicole (@chronically.nicolee) with caption : "Finally got fitted for my AFO brace today! It should be ready in about two weeks & im super excited because right now th" - 1764093001782710163
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Finally got fitted for my AFO brace today! It should be ready in about two weeks & im super excited because right now they arenโ€™t letting me put weight on my foot and crutches suuuck (also does anyone who has afos know any tricks to get them to fit in shoes) #spoonie

Enjoy_xx (@enjoy_xx) Instagram Profile Photo enjoy_xx

Enjoy_xx

image by Enjoy_xx (@enjoy_xx) with caption : "Being ill is sorta my default, but when I get strep and colds on top of it, itโ€™s extra frustrating! That said, Iโ€™m tryin" - 1764092140257260737
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Being ill is sorta my default, but when I get strep and colds on top of it, itโ€™s extra frustrating! That said, Iโ€™m trying to get some rest while also periodically finishing up some side quests in ! ๐Ÿ–ค #spoonie

image by Personal blog (@the_bearded_addisonian) with caption : "Life is full of these moments and it's where mine is at right now. It's so hard to make decisions which will mean changi" - 1764091835782821738
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Life is full of these moments and it's where mine is at right now. It's so hard to make decisions which will mean changing yourself completely. I think I know what I have to do because it will benefit me both physically and mentally but trying to impliment it is the hardest part. You have to try and bury your demons in order to move forward and change for the better. That is a task in itself #spoonie

Shelby Lynne (@littlelymelife) Instagram Profile Photo littlelymelife

Shelby Lynne

image by Shelby Lynne (@littlelymelife) with caption : "Finally at the point where I might be able to handle working full time again. I still have days thatโ€™s are extremely cha" - 1764091821833900439
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Finally at the point where I might be able to handle working full time again. I still have days thatโ€™s are extremely challenging. Iโ€™m hopeful I can find the right fit, though I know it will be tough. If you are at a point in your health journey where you are able to work, what has been the most helpful for you? How did you make it work? #spoonie